These useful health related links are provided for your convenience. Although the quality is checked, IFKF takes no responsibility for content or reliability. Listing a website should not be taken as our endorsement.
Other sites linking to our website www.ifkf.net may have done so without our knowledge or permission.
CKD EARLY DETECTION PROGRAMS
International Kidney Early Evaluation Program IKEAJ Japan
Kidney Early Evaluation Program KEEP USA
Kidney Evaluation for You KEY Australia
CLINICAL PRACTICE GUIDELINES, STUDY GROUPS, CKD PUBLICATIONS
Caring for Australians with Renal Impairment (CARI) Guidelines
Canadian Society of Nephrology (CSN) Guidelines
Dialysis Outcomes and Practice Patterns Study DOPPS Study
Chronic kidney disease in children: the global perspective
Chronic Kidney Disease as a Global Public Health Problem
Published Kidney International - Volume 72, No 3 2008
Guidelines European Best Practice Group ERA-EDTA
Kidney Disease Outcomes Quality Initiative Guidelines KDOQI
Kidney Disease: Improving Global Outcomes KDIGO
NICE Guidelines UK search results 'Kidney'
NICE Guidelines UK Chronic Kidney Disease Overview
PREVEND Study Prevention of Renal and Vascular End-Stage Disease
Renal Association UK CKD Guidelines
EDUCATIONAL WEBSITES - FOR HEALTH PROFESSIONALS
Chronic Kidney Disease - A Guide for Primary Care - UK
*CKD Online Advanced educational resource initiated by UK Department of Health.
CKD Forum of British Renal Society educates on reclassification of CKD and changes to QOF and CKD NICE guidlines. Note Clinical Management and Education Resources (extensive Slide Library for professional presentations) Registration essential.
Kidney Check Australia Taskforce GP Education Program
Kidney Disease Specialist Library
Occupational Safety and Health Administration
International Association for the Study of Obesity (International Obesity Taskforce)
Obesity Society (USA) Info online for patients
United States National Kidney Disease Education Program (NIH)
US Food and Drug Administration FDA
United States National Library of Medicine NLM
World Action on Salt and Health WASH
Working Group on Renal Rehabilitation and Exercise Physiology
EDUCATION LINKS FOR PATIENTS
DaVita USA Offers educational 'kidney' resources
Drugwatch USA Understand medications and conditions
Life Options Rehabilitation Program Wisconsin USA
Nephron Information Center
Online health calculators Kidney disease tool NHS UK
Oxalosis and Hyperoxaluria Foundation
Seize CKD Educational Tool NKF USA
Wikikidney.org USA Wiki-monitored by nephrology professionals
HYPERTENSION
Hypertension Canada
International Society of Hypertension
Stroke & Blood Pressure Canada
World Action on Salt and Health (WASH)
World Hypertension League
World Hypertension Day Annually in May
INTERNATIONAL HEALTH CENTRES AND INSTITUTES
Center for Disease Control and Prevention (CDC)
National Institute of Health (NIH)
World Health Organisation (WHO)
JOURNALS AND PUBLISHERS
American Journal of Kidney Disease
British Journal of Urology
Class education for kidney professionals & kidney patients
Dialysis and Transplantation
Nephrology Dialysis Transplantation
DocGuide.com Highlights peer-reviewed journals, national / international conferences and world's most respected medical news groups
Journal of Renal Nutrition
Hypertension, Dialysis and Clinical Nephrology
Karger Publishers
KMDLinx Nephrology Medical news for nephrologists, e-news
Kidney International
MEDWORLD Comprehensive list of Medical Journals
Nature Clinical Practice Journals with authoritative interpretations of key research, translating latest findings into clinical practice globally
Nephrology Dialysis Transplantation NDT)
Nephrology News and Dialysis (NN&I)
Peritoneal Dialysis International
Peritoneal Dialysis Today
Saudi Journal of Kidney Diseases and Transplantation PUBMED indexed
KIDNEY PATIENT ASSOCIATIONS
American Association of Kidney Patients AAAKP
European Federation of Kidney Patients Associations CEAPIR
European Kidney Health Alliance EKHA
Baxter Global
Dutch Kidney Patients Association
European Transplant and Dialysis Sports Federation
Fresenius Medical Care USA
Indonesian Kidney Care Club
National Kidney Federation UK
National Kidney Foundation USA
NephroCure Foundation (Nephrotic Syndrome) USA
Orthobiotech UK
Renal Support Network USA
World European Transplant Games Federation
KIDNEY PATIENT MANUALS - SELF-MANAGEMENT OF CKD
Kidney Beginnings: A Patients Guide to Living with Reduced Kidney Function AAAKP USA
Living with Reduced Kidney Function Patient handbook Kidney Health Australia
NICE Guidelines Identifying and treating long term kidney problems UK
KIDNEY PATIENT CHARTERS AND PRINCIPLES OF OPTIMAL CARE
Rights of chronic renal failure patients undergoing chronic dialysis therapy
Vittorio E. Andreucci1, David N. S. Kerr2 and Joel D. Kopple3
1Department of Nephrology, School of Medicine, University Federico II of Naples, Italy, 2National Kidney Research Fund London, UK and 3Division of Nephrology and Hypertension, Harbor-UCLA Medical Center, David Geffen School of Medicine & School of Public Health, UCLA Los Angeles CA USA Correspondence: Vittorio Andreucci MD, Via Giacomo Puccini 18, I-80127 Napoli Italy
Our IFKF Patient Advocacy Committee developed a set of rights for individuals with end stage renal failure (ESRF) approved by IFKF Board of Directors. Twenty rights have been developed, in the following categories: (i) need of treatment and choice of patients; (ii) treatment of ESRF by haemodialysis; (iii) treatment of ESRF by peritoneal dialysis; and (iv) renal transplantation. It is hoped this document will provide a stimulus to more scientific inquiry and discussion as to what rights patients possess with regard to treatment of CKD, regardless of where they live or what may be their economic, social, ethnic or political status.
United Kingdom
- Dialysis Manifesto Better dialysis service, saving lives, improving quality of life
- National Service Framework (NSF) for Renal Services UK
Canada
- Principles of care for Canadians with CKD
Australia
- Principles of optimal care of Australians with CKD (Kidney Health Australia)
PROFESSIONAL SOCIETIES
American Society of Nephrology
American Kidney Fund
American Association of Dialysis Advocates
American Society for Pediatric Nephrology
Brazilian Society of Nephrology
British Renal Society (BRS) Highly recommended website
Canadian Society of Nephrology (CSN)
COMGAN Commission for the Global Advancement of Nephrology
European Renal Association-European Dialysis and Transplant Assoc
European Dialysis & Transplant Nurses Association-European Renal Care Assoc
European Kidney Health Alliance (EKHA)
European Renal Association European Dialysis & Transplant Association
European Society for Paediatric Urology
International Society of Nephrology ISN/COMGAN)
International Federation of Diabetes
International Society of Peritoneal Dialysis (ISPD)
International Society of Renal Nutrition and Metabolism ISRNM
Kidney and Urology Foundation of America
Latin American Society of Nephrology and Hypertension
National Association of Nephrology Technicians/Technologists (NANT)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
National Renal Administrators Association (NRAA)
Renal Physicians Association (RPA)
Renal Association UK
RENAL REGISTRIES
Australia & New Zealand Dialysis and Transplant Registry ANZDATA
Australian & New Zealand Organ Donation ANZOD Registry
Austrian Registry
Belgian Registry
Brazilian Kidney Transplant and Dialysis Registry
Canadian Registry
Dutch Renal Registry (in Dutch)
European Renal Registry
European Dialysis and Transplant Association Registry (ERA-EDTA)
Eurotransplant
Finnish Registry
French Registry
German Registry
Italian Registry
Malaysian Registry
Netherlands Registry
Norwegian Registry
Renal Association
Scottish Registry
Spanish Registry
Swedish Dialysis Database SDDB
UK Transplant
UK Renal Registry
United States Renal Data System
Valencia Registry
TRAVEL AND DIALYSIS
Australian Dialysis Unit Guide Private/public dialysis units, by State
Bulgarian Holiday Dialysis Units
Cyprus Holiday Dialysis Unit
Dialysis at Sea
Dialysis Escape Line: Australia
eNeph
Eurodial
Fresenius Midical Care - Holiday Dialysis
Global Holiday Dialysis Facilities
Holiday Dialysis Dr Berger: pre-qualified dialysis-clinics through Europe
National Kidney Foundation of Samoa - holiday dialysis
NKF USA Holiday Pages
Travelling on dialysis advice (DaVita USA)
TRANSPLANTATION
Association of ORGAN Procurement Organization
American Society for Artificial Organs (ASAIO)
British Transplant Society
Nephrology Dialysis and Transplantation Educational (ERA-EDTA)
North American Transplant Coordinators Organisation (NATCO)
OECD Health Data 2008 Statistics and Indicators for 30 Countries
OECD- Functioning Transplants: global snapshot
UK Transplant
*How can we achieve global equity in provision of renal replacement therapy?
*World Health Organisation Bulletin W.H.O.
WORLD HEALTH EVENTS
World Kidney Day Thursday March 10 2011
(held 2nd Thursday in March annually)
World Diabetes Day 2009-2013: Diabetes Education and Prevention
(WDD held November 14 annually)
World Hypertension League manages World Hypertension Day
WHD Fact Sheet Healthy Weight: Healthy Blood Pressure
World Salt Awareness Week (February annually)
World European Transplant Games Federation
Updated 10 June 2010