IFKF MEMBER BLOG - Join your Blogosphere

Location: Blogs IFKF Council Member Blog
Posted by: Administrator Account	9/22/2008
Leave updates on local events in your organisation. Ask questions, discuss problems, create a thread! I hope you enjoy this innovation to our website. If you notice a problem- email teresa.taylor@kidney.org.au - regards your Web Angel

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Status of Mircera

By Jim Scherrer on 10/7/2008

We are US citizens living in Puerto Vallarta, Mexico for the past 11 years. My wife was on dialysis for 5 months but has been off for the past two months and her creatinine is holding steady at 3.5.

The nephrologists here in Mexico have prescribed Exetin-A whereas we used Procrit, Epogen, and Aranesp in the US. While she is off dialysis, I administer the EPO at 10,000 i.u.´s/week and maintain her hemoglobin at 12 with no problem.

The EPO alpha burns like hell and my wife would really like to try Roche´s new miracle drug, Mircera, for a while. br>
Can anybody help us in finding a supplier of Mircera?

Blogosphere ideas from Uruguay

By Claudio Orazietti on 8/11/2009

I´m the Vice-President of the Sociedad Uruguaya de Nefrología www.nefrouruguay.com. In the lasts years with the FREU (Fundación Renal del Uruguay) and ATUR (Asociación de Transplantados del Uruguay) worked for World Kidney Day. Both the mentioned organizations are Members of the IFKF. You can see some activities described in Pasts Events - Uruguay at the WKD web page.

In November we held a Conmemorative Celebration of the 50 years of the first hemodialysis in our country. The Activities were at the Hospital de Clínicas at the Centro de Nefrología de la Facultad de Medicina de la Universidad de la República. There was a lot of emotion with the participation of the Prof Emmeritus Dr Dante Petrucelli (who participated 50 years ago in our first hemodialysis). Dr Miguel Riella participated of the cellebration with speaches about his Kidney Foundation and clinical topics. At any moment we remind you of our WKD efforts! We think this conmemorative events allows us to have a new opportunity to send to our people the messages of the relevance of the care of the kidney function. WE WANT TO STIMULATE OTHER ORGANIZATIONS IN OTHER COUNTRIES TO TAKE IN ACCOUNT THIS EXPERIENCE.
Now we are working for the 2009 WKD. It brings some difficulties to organize effectives activities, but we continue. Soon we will send information. I logged the WKD Forum and send a message.
With kind regards - Dr Claudio Orazietti

Re: Join your Blogosphere

By Stephen Tan on 5/8/2009

Hi, I am from Malaysia. My father is undergoing dialysis everyday. I would like to know is it illegal for Malayisia government servant to have transplant of both of his kidney. Both of my father kidney have failed to function. He is a senior civil servant and according to his colleague, if he undergo a kidney transplant, then he would lost his retirement fund as it is not ethical for civil servant to have organ transplant.

I really hopes someone from IFKF can help me to solve my problem.

Re: Join your Blogosphere

By MERCEDES FAUSTINO on 8/11/2009

Hello people all over the world! Im from Philippines seek financial help for my sister and father who both having their dialysis twice a week and it costs too much.. We dont know where we'll find money for their dialysis. Some government org. here in our country give only once a year. I need your help. I know that some here has a kind heart and it will return more back to u if u give..If u want to know me My contact number HAS BEEN REMOVED DUE TO WEB POLICY. Thank you and God Bless!

Re: Join your Blogosphere	By DR.KARUNAN KANNAMPOYILIL(PRAKASHAN KP) on 5/25/2009
Hi I am from INDIA www.inkf.org.in Founder and Director Kidney foundation we deal with the Early Detection and Prevention of Kkidney and Related Diseases you all know we carry the number two of the heavy global population in narrow strip of land I am sure it is high time for the preventive measures.

seeking finnancial help

By aneeshshankar on 11/2/2009

Sir,mY name IS ANISH i contacted AKF INSTITUTION BUT THEY DONT HAVE THE FUNDING POLICY IN INDIA MY PROBLEM IS MY FATHER IS A KIDNEY PATIENT HE IS IN ADIALAYSIS STAGE BUT SIR IF CAN GO FOR A GOOD LEVEL OF TREATMENT I HOPE THAT HE CAN BE SAVE FROM DIALAYSIS
SIR WE ARE FROM MIDDLE CLASS FAMILY WE ARE NOT HAVING THAT MUCH FINANCIAL CAPABILITY Thats WHY I ASKED FOR AFINANCIAL HELP PLEASE HELP ME THIS IS MY LAST RESORT please
regards
aneeshshankar
Contact information REMOVED DUE TO WEB POLICY.

Re: Join your Blogosphere

By IFKF Web Angel on 11/2/2009

Dear Aneeshshankar - unfortunately the IFKF can not offer financial support to the millions of people who are in the same situation as yourself. Seeing your family in pain knowing that medicine can help them, but being unable to supply that is a terrible burden on anyone.
The IFKF are trying to work with Government and departments that manage public health to increase prevention and early detection efforts globally. As an organisation was do not receive massive funding. Our Members pay fees which operate the IFKF.
I hope you and your family find peace in their life.
Regards - IFKF Web Manager

Re: Join your Blogosphere	By adebayo sokunbi on 12/29/2009
I thank the ifkf for its wonderful work so far. I hope that the kidney foundations and early discovery programs would help so many people who other wise would be in trouble when their kidneys fail at end stage. The goal will bee to continue to encourage these programes all over the world.

FINDING A KIDNEY

By JACK LAKEY on 1/16/2010

HELLO I have a close friend that is in the final stages of kidney failure and lives in the united states he needs a kidney right away and in the us the wait is very long. Does anyone know how i could find him a kidney in the international market how long it would take and is it illegal to offer monatary gain to speed up the process please email me at REMOVED DUE TO WEB POLICY (reply to Jack within the Blog) thanks.

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International Federation of Kidney Foundations

Improvement in the quality of life and quality of care
for all at risk of, or suffering from kidney disease, regardless of
race, colour, creed, gender or social class.

International Federation of Kidney Foundations

Improvement in the quality of life and quality of carefor all at risk of, or suffering from kidney disease, regardless of race, colour, creed, gender or social class.

Improvement in the quality of life and quality of care
for all at risk of, or suffering from kidney disease, regardless of
race, colour, creed, gender or social class.